Brain Surgery

I realized recently that I never posted much here about the biggest little thing in our lives this past year:  Brian’s Little Friend, the asshole brain tumor.  The acoustic neuroma that appeared out of nowhere, so big that every surgeon looking at his MRIs had to do double-takes and come back to us saying things […]

Kender and School

It feels weird to be talking about Kender going to school.  We’ve been homeschoolers for so long.  It’s all about what’s best for the kids, though.  In Kender’s case, right now, a group learning environment seems like the best choice. Although Kender is still making lots of progress, he still resists being directed and guided […]

I Can’t See

I am autistic. To be more specific, I am a very high functioning autistic, which means that I don’t look autistic.  I pass for neurotypical most of the time.  The passing makes it hard to cope with, though.  Sometimes I wish there were some visible symbol I could have so that people would know what […]

What’s It Like?

Another post today about living with disabilities reminded me of a question somebody asked me last night:  What’s it like to live with a blind husband and all these blind children? First off, the connection with the article:  We see a lot of this attitude around our family’s blindness. People think blindness has to be all-or-nothing, […]

The Kender Project: A Roundtable IEP

My first children were a set of triplets born at 26 weeks gestation, 14 weeks early.  We went from happy young couple planning to start a family to being thrown straight into the crazy and confusing world of the Neonatal Intensive Care Unit, times three.  Because they were both triplets and micropreemies, we got a […]

The Kender Report — Surgery Dog Edition

Yesterday afternoon I saw an older man and a little girl walking down the sidewalk next to a busy street.  He had a walking stick with him, a little more than waist-high, with a leather loop hanging about halfway down.  He moved slowly but steadily along in his yellow jacket, just out for a stroll. […]

Fake a Disability

“Hey, did you know that [insert disability here] people get to [insert special access here]?  We could do that, too, because the government says that businesses aren’t allowed to ask questions.  Here, you pretend to have [insert disability here] and I’ll [get fake certification/baldly lie/pretend nothing’s wrong], and then we’ll get [insert special access here], […]

Borderline

Everything medical in our lives (except for Kender!) seems to be borderline.  The boundary line (ohai Loki!) between “clinical” and “not a problem” is not always a happy place to live.  Being on the boundary line means that medical treatment almost always can help, but doctors won’t diagnose or treat anything until it crosses that […]

The Kender Report

Kender has had a busy week. On Monday, he went under anesthesia for an eye exam, which showed nothing new. Dr. Trese said we could start backing off one of the three eye drops Kender takes every day, which is happy news. The bigger event was Wednesday, when Kender went under anesthesia again, this time […]

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