Brain Surgery

I realized recently that I never posted much here about the biggest little thing in our lives this past year:  Brian’s Little Friend, the asshole brain tumor.  The acoustic neuroma that appeared out of nowhere, so big that every surgeon looking at his MRIs had to do double-takes and come back to us saying things […]

Ideal Body Weight

I will open this by saying that I’ve been told I was overweight or obese my entire life. My whole life, all the way back to junior high. My mom had me in Weight Watchers and special exercise programs and therapy programs for fat kids as a teenager. I learned all the height and weight […]

EDS Hypermobility Type

I posted once about hypermobility syndrome after I first met with my current rheumatologist back in 2013, but I never followed up on it.  Now I’ve been living with the diagnosis and integrating it into my view of myself for almost three years, and because a couple of my friends have the same condition I feel […]

Kender and School

It feels weird to be talking about Kender going to school.  We’ve been homeschoolers for so long.  It’s all about what’s best for the kids, though.  In Kender’s case, right now, a group learning environment seems like the best choice. Although Kender is still making lots of progress, he still resists being directed and guided […]

I Can’t See

I am autistic. To be more specific, I am a very high functioning autistic, which means that I don’t look autistic.  I pass for neurotypical most of the time.  The passing makes it hard to cope with, though.  Sometimes I wish there were some visible symbol I could have so that people would know what […]

Apples and Oranges

You can’t directly compare conditions a hundred or two hundred years ago to today.  At first glance, this seems obvious, and yet I consistently see people doing this.  The comparisons are made when we talk about vaccination, obesity, infant mortality, childbirth methods, autism, child labor, and probably half a dozen other topics that I can’t […]

What’s It Like?

Another post today about living with disabilities reminded me of a question somebody asked me last night:  What’s it like to live with a blind husband and all these blind children? First off, the connection with the article:  We see a lot of this attitude around our family’s blindness. People think blindness has to be all-or-nothing, […]

Transformation and Perspective

One day last week, while hiding in the coat closet, Kender discovered our old vacuum cleaner.  It’s been hiding there for many years, gathering coats instead of dust.  He decided this was going to be his new toy, and he pulled it out, hauled it to the hallway, and plugged it in.  Our first response […]

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